Título del libro: Advances In Psychology Research
Título del capítulo: Towards the co-development of the definition of depressive episode in ICD-11: Field study on theaccessibility, acceptability andadequacy of terms according tomexican experts by experience
REBECA ROBLES GARCIA; ANA FRESAN ORELLANA; MARIA LUISA RASCON GASCA;
Autores externos:
Idioma:
Año de publicación:
2021
Palabras clave:
Classification; Communication; Depressive episode; Diagnosis; ICD-11
Resumen:
Mental health service users and their relative caregivers are acknowledgedas "experts by experience," who should be involved in participatory processes to develop relevant, sensitive clinical tools, including nosology systems. Since depression is one of the most common and disabling mental disorders, with a large treatment gap in Latin American countries such as Mexico, the aim of the present study was to explore the frequency and narrative of positive, neutral and negative perceptions of the accessibility (vs. difficulty), acceptability (vs. related to negative feelings) and adequacy (i.e., correspondence with the patient's experience) of the International Classification of Diseases 11th Revision (ICD-11) depressive episode diagnostic guidelines terms, from the perspective of both those experiencing it and their primary relative caregivers. METHOD: This is a cross-sectional study based on a structured, face-to-face interview designed to facilitate completion of a questionnaire to explore users' and caregivers' personal opinions on essential features of depressive episode in ICD-11. Participants were fifteen Mexican volunteer adult (>18 years old) users of mental healthcare services for a depressive episode, and fifteen Mexican adult primary caregivers of users with depression. RESULTS: Most of the essential features were understandable and acceptable to both users and caregivers, as well as sufficiently consistent with users' experience. However, some feature descriptions were problematic for many users and caregivers. "Beliefs of low self-worth or excessive or inappropriate guilt that may be manifestly delusional" was the least understood essential feature in both groups (40% of users and 26.7% of caregivers did not understand it). Moreover, it was considered unacceptable by some users (e.g., "Delusional is stigmatizing... I'm not crazy")and showed the lowest correspondence with their previous experiences. The second least understood term was "Psychomotor agitation or retardation" (33.3% of patients and 20% of caregivers) (e.g., "Sounds like brain retardation"). Finally, "Recurrent thoughts of death, recurrent suicidal ideation, or evidence of attempted suicide" was the term least frequently used by users to describe their experience of the symptom. Participants' recommendations for improving the accessibility, acceptability or adequacy of the terms are included (e.g., "I would remove 'manifestly delusional'"; "Slower movements than normal"; "Remove 'recurrent' and add 'frequent,'" respectively). CONCLUSION: Findings highlight the need for the co-development of nosological systems with experts by experience to change language that is confusing or unacceptable to them. The language in the current psychiatric classifications for depressive episode could be improved to increase its value for service users and their caregivers. © 2021 by Nova Science Publishers, Inc. All rights reserved.
Entidades citadas de la UNAM:
ISBN:
9781536197792
Editorial:
Nova Science Publishers, Inc. Nombre de la publicación:
Towards the co-development of the definition of depressive episode in ICD-11: Field study on theaccessibility, acceptability andadequacy of terms according tomexican experts by experience
Página inicial:
167
Página final:
184
Tipo de producto:
Capítulo de un Libro
